Tuesday, 23 December 2008
Thursday, 18 December 2008
Written in plain English and covering prevention, symptoms, diagnosis, treatment and living with kidney disease, the Guide also enables health professionals, carers and those living with the condition to search for local services such as local support groups.
Friday, 12 December 2008
The year began with Gordon Brown informing Parliament that kidney disease is a major vascular risk factor - the first Prime Minister in history to use the “k” word in the Palace of Westminster. As the year draws to a close we are putting the final touches to a new NHS organisation – NHS Kidney Care, an improvement team for the kidney community. Between those time points lots has happened:
- In February the Organs for Transplants report was funded.
- New vascular checks for all above the age of 40 has been inveiled.
- 25% more people have been identified with early kidney disease.
- The NICE guideline on CKD was launched.
- The Dialysis Manifesto has been produced by the All Party Parliamentary Kidney Group.
- New kidney units have been opened.
- The National Kidney Federation has moved to new offices.
- More people are receiving home haemodialysis now than at any time for several decades.
- We have continued to see growth in live and non heart beating donor transplant.
2008 has been a good year, lets make 2009 a great year for kidney care.
Thursday, 11 December 2008
Ninety one years later, Lord Darzi, another surgeon said “we can only be sure to improve what we can actually measure” in High Quality Care for All.
A set of clinical indicators have now been assembled from routine data that the NHS already collects (and sometimes, but rarely is used!). In kidney care we are fortunate to have “form” as Sir Bruce Keogh (Medical Director of the NHS) says – a “track record” or “previous”. That is in the form of the Renal Registry that collects key information on dialysis and transplantation.
The fact that the Renal dataset, covering the whole kidney care pathway has now been approved and mandated from May 2009 will also help with data completeness and quality.
The clinical indicators have been developed in partnership between the Department of Health and the Royal Colleges, comments are being sought by the Information Centre.
Clinical indicators are of course only part of quality. The Institute of Medicines’ influential report “Crossing the Quality Chasm” (2001) identified 6 aims for improvement, each of which could be considered aspects of quality: safety, effectiveness, patient centredness, timeliness, efficiency and equity.
Clinical indicators are the start point, patient experience, safety and patient reported outcomes must also be gathered if we are to achieve Lord Darzi’s vision of “High Quality Care for All”, and high quality care for all is the reason why 1.3 million people in the UK get up in the morning.
This is a really good video clip so if your Trust policy doesn’t allow UTube fire it home and look there.
Wednesday, 10 December 2008
This is the legal notice requiring the service to provide the 693 data items mandated in the first phase of the national renal dataset. The notice and the requirement comes into effect on 31 May 2009.
Implementation of national renal dataset
Q & A: national renal dataset
Tuesday, 9 December 2008
The document identifies the requirement to actively manage and coordinate the porcess. The care coordinator key worker model - I think that is a youth worker to you and me, and the importance of not limiting this role to health is key message. Most issues in transition are generic but this document has a good section on chronic kidney disease as well.
I’m glad that patients have really responded to the survey, because I think it will be an important tool for delivering better patient transport services. There was an over 90 per cent response rate in 67 of the 252 units that took part, which is great.
Separate surveys were also sent to renal unit managers and commissioners of renal services, of whom 81 per cent and 89 per cent responded respectively – an impressive figure that reinforces the commitment that people have to improving services.
The NHS IC are now analysing the survey data, and they are planning to release an interim set of results to renal units in January 2009. The full results will be published in April.
Once the interim results are published, I want to see people turning their attention to action planning because I don’t think any units will be providing the service people receiving haemodialysis need . All renal units should be thinking about how they can use the results of the audit to improve services – who is doing that in your Kidney unit? This could involve setting up action planning groups and working with patients, to learn from what works best in other areas, and see whether it can be applied locally. I know The NHS IC are developing an online resource to give practical support for action planning, and I will let you know here when this is available.
In the meantime, I am really pleased to see the progress that the National Kidney Care Audit is making, and look forward to seeing the results.